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Living with SMA yet happy!

To support the breathing function, Artem needs an oxygen concentrator and an aspirator.
Author: Yana Lobanok, translated by Anna Oliynyk, www.deti.zp.ua Published: May 23, 2019, 17:40 1167

Invoice

Since early March, our small hero Artem has a new neighbor in his bedroom - a non-invasive ventilatory support device (NIVS). Thanks to you, our dear supporters, we were able to complete acquisition and pay a specialist to configure it. Now, the boy sleeps at night guarded not only by his mother, who changes his body position several times, but also his new friend helping him to breathe.

Maybe life with spinal muscular atrophy (SMA) is unusual, but there is still room for a lot of joy and happiness. Besides breathing exercises, physical training, massage, and swimming, there are some more pleasant things in Artem’s routine: walking outside, watching favorite cartoons, playing table games, and drawing. He recently attended a great circus performance!

Sadly, the disease is progressing. Lacking abdominal and dorsal muscles, his backbone and chest are deforming which depresses respiration. A pulse oximeter, aspirator, expectorator, devices to support respiratory function, and a special diet supplemented with amino acids and vitamins top the list of the things that children with SMA need. Without the special equipment, Artem cannot live!

To allow a comfortable life at home rather than hospitalized, Artem needs an oxygen concentrator and (because he cannot cough) an aspirator to remove mucus from his respiratory passages.

Despite the prognosis and thanks to the care and devotion of his parents, Artem lives! Let’s help this wonderful boy to live as long as he can living at home!

On June 5, a project started on the Ukrainian Charity Exchange Curative oxygen for Artem Therefore, you can help the boy and the site our partners.


This publication related with such categories:
     Sick children of Ukraine    Ukraine  News about Artem Shevchenko  Publications made by Happy Child, Ukraine  

Happy Child foundation - effective help to the most needy children of the Zaporozhye region, Ukraine, since 2004

More than 16 years of trust of donors and benefactors, thousands of aid transaction processed every year. Full transparency in the usage of donation

They need help:


Egor Linkov, 1–Cystic Fibrosis, Difficult Condition


Vladislav Bogomazov, 6 years old - Cystic fibrosis, severe course


Artem Galushka, born in 2014 - Brain cancer (medulloblastoma)


Bogdan Paul 3 years - Cerebral Palsy


Danil Sirota, born in 2003 - sarcoma of a left thigh


You donated $174 571 in 2020

Our expenses in 2020

120 sick children: $92 549 
Medical equipment: $6 836
To disabled orphans: $20 169
To eco-village for orphans: $11 018
To orphans and poor families: $4 018
To adults ("Helpus" charity): $8 234
Administration and fundraising: $18 049
Total sum of expenses: $166 812 

$4 742 485 donated since 2007


A Child Needs a Family: Igor Sh., born in 2006


Child needs a family: Evelina, 15 y.o.


The Story of Someone’s Destiny: Julia A.