Orphans and sick children of Zaporozhye, Ukraine
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Ruslan Sherbakov, 6 years old - Spinal muscular atrophy Hoffman

Fundraising is closed! Grateful kind and sympathetic people, with your help, the necessary amount collected!

Author: Olga Vovk, translated by Andrei Vernon, deti.zp.ua Published: 2016-07-23 22-55-00 Viewed, times: 2305
  
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Ruslan Sherbakov, 6 years old

Diagnosis: Spinal muscular atrophy Hoffman.


Medical bill: page 1, page 2, page 3.

Findings: page 1, page 2, page 3.




ATTENTION! AS AT 10/08/2016 city: Fundraising closed!!
Grateful kind and sympathetic people, with your help, the necessary amount collected!
=====================================



Ruslanchik (Ruslan) is a bright and cheery boy. From the moment you meet him and his family you can tell that they are a very loving family. Thats how at first sight we were covered in goose bumps and admiration. Ruslan is almost always full of life and constantly smiling always positive. It is in these hospital walls that Ruslan is held captive. His mother, Sveta, prays for help.

The reserve unit with which Ruslan breathes at home broke. The company in Germany said that repairs would cost 2,535 Euros an unrealistic amount of money for this family. At any moment while at home, Ruslan could be in need of oxygen. The main ventilator is broken and he is using using the previous ventilator.



Ruslan is an only child. Before his birth, his mother Svetlana was infertile for 18 years. Ruslan was born on time and healthy with the help of a C-section.



For the first four and a half months everything was wonderful, but then Ruslan stopped developing his motor skills (he wouldnt turn over, crawl or sit up). The pediatrician reassured the family and said that sometimes boys are lazy and take longer to develop. When Ruslan was eight months old, we received the diagnosis of spinal muscular atrophy Hoffman.



For the first two years of his life Ruslan did not have any health problems. He just couldnt walk, but could sit, eat and speak. When he was two he couldnt stop talking he knew many poems and loved to recite them. But then he had bronchitis and in a month had a serious case of pneumonia with respiratory failure, intensive care and was on a ventilator, but he was eventually able to get healthy. In 2014, he had a tracheotomy and was told that he would need a ventilator the rest of his life.



Spinal muscular atrophy is a rare, autosomal recessive hereditary neuromuscular disease caused by the progressive denigration of spinal cord cells which leads to weakened muscles. In simple terms Ruslans muscles are so weak that it is difficult for him to simply breathe and the curvature of his spine is starting to prevent him from breathing.



His mother, Sveta, wrote about her life with her special son:
I had to learn how to live differently, listen and feel Ruslans quiet speech. He cries and enjoys life all without making any sound a mother can hear. The little guy can neither sit nor stand and also has a chest deformity and misaligned spine. After the tracheostomy he started to have problems with his gastrointestinal tract and now there are other problems. No matter what, I love my dear son.



We, as a collective group of volunteers at the fund, are joining together to answer Svetas pleas for help. We understand that a hospital is not a place to live. A child should live at home play, sing songs and read. A child should not live in fear and watch other children die in the hospital. Give Ruslan the gift of a happy and healthy childhood with his mother and father within the walls of his family home. The amount of money we need to collect is 72,000 hryvnia that is the cost of living at home.


The family lives in Zaporozhe.

Svetlanas contact information: +38 067 970 93 84 (Ruslans mother)






Report on donations

Date: Donor: Country: Sum:
16.06.2016Best SecondUkraine299.85 US dollars
14.06.2016VitalinaUkraine4 US dollars
11.06.2016Yurij M.Ukraine2 US dollars
08.06.2016Natal'ya N.Ukraine2 US dollars
08.06.2016Elena Ya.Ukraine8.01 US dollars
08.06.2016Mariutsa O.Ukraine12.02 US dollars
07.06.2016Andrej G.Ukraine38.9 US dollars
07.06.2016Olga and RuslanUkraine2 US dollars
Total sum of received donations 368.78 US dollars



Expenses report

Date: Expense title: Sum, US dollars:
20.03.2017Specialized enteral nutrition Nutrikomp 178.38 US dollars
09.11.2016Acquisition of individual filters for ventilation168.21 US dollars
02.09.2016Bacterial reusable filter (electrostatic)199.22 US dollars
21.10.2014Medications: Aspiration catheter147.1 US dollars
02.09.2014Lekarstvennh the purchase of drugs: Catheter 87 pack22.02 US dollars
30.04.2014Aspiration 7ED Biomed 166.64 US dollars
24.03.2014delivery catheters2.75 US dollars
24.03.2014Heat and moisture exchanger TRACH-VENT +, sterile261.86 US dollars
20.03.2014Pharma Trach Basic artificial nose for the tracheostomy tube 150 pcs.272.24 US dollars
12.03.2014Catheter 600 pcs.200.05 US dollars
31.10.2013Postage oxygen concentrator13.51 US dollars
29.10.2013Oxygen Concentrator for respiratory therapy oxy 60001751.53 US dollars
31.05.2013Helical computed tomography of the chest with contrast83.32 US dollars
Total expenses for this category 3467 US dollars






This publication related with such categories:
                     Old appeals of sick children, Ukraine    Publications made by Happy Child, Ukraine    



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