News about Alisa Onufreeva
Reflecting on life with cystic fibrosis
Published: July 26, 2019, 21:30
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Natasha Onufrievas reports on frank discussions with her daughter Alice about life with cystic fibrosis.
1055 Natasha Onufrievas reports on frank discussions with her daughter Alice about life with cystic fibrosis.
International Day of Cystic Fibrosis – Listen to Us and Learn About Us!
Published: September 8, 2016, 12:591370
The main goal of this day is to spread the word and teach people about cystic fibrosis. On this day we want people to learn how we can improve the lives of those afflicted with the disease.
1370 The main goal of this day is to spread the word and teach people about cystic fibrosis. On this day we want people to learn how we can improve the lives of those afflicted with the disease.
You are my precious air – without you I cannot breathe!
Published: April 29, 2016, 15:001722
“You are my air.” “Without you I cannot breathe!” “I cannot imagine life without you.” “We are now inseparable.” – these are not simply words, but phrases that describe the lives of people with cystic fibrosis.
1722 “You are my air.” “Without you I cannot breathe!” “I cannot imagine life without you.” “We are now inseparable.” – these are not simply words, but phrases that describe the lives of people with cystic fibrosis.
The Philosophy of Life with Cystic Fibrosis
Published: November 30, 2015, 17:301385
Children diagnosed with cystic fibrosis are often much more ambitious than their healthy peers. These brave kids cherish every single day and every breath they take
1385 Children diagnosed with cystic fibrosis are often much more ambitious than their healthy peers. These brave kids cherish every single day and every breath they take
The program of helping the children diagnosed with cystic fibrosis in case histories
Published: April 28, 2015, 15:551878
This program is based on real stories of the children. All the events are real and taken from the lives of the children we support. In the future we will publish the official recommended program on our website, to be implemented by the government official
1878 This program is based on real stories of the children. All the events are real and taken from the lives of the children we support. In the future we will publish the official recommended program on our website, to be implemented by the government official
Alisa Onufriyeva, born in 2007 - cystic fibrosis
Published: February 24, 2014, 12:409562
"Why was I born to stay in the hospital?"
9562 "Why was I born to stay in the hospital?"
Publications found: 6
