Orphans and sick children of Zaporozhye, Ukraine
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Viktoria Butenko, born in 2002 cystic fibrosis

Our dear Viktoria became an angel on July 23 2015...May her soul rest in peace!

Author: Olga Vovk, translated by Anna Oliynyk, www.deti.zp.ua Published: 2014-12-16 11-10-00 Viewed, times: 4299
  
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Viktoria Butenko, born on 18 July 2002

Diagnosis: Cystic Fibrosis.






Our dear Viktoria became an angel on July 23 2015...May her soul rest in peace!

Vikas mother, Alina, was proud to tell us about her daughter, her voice trembling. Their situation is rather typical for the beginning of life of a child diagnosed with cystic fibrosis at birth. But for every mother it is her own tragedy. From the very first days, the little girl had to fight hard for her life: after her birth, she had a surgery to remove part of her intestinal canal. Doctors assumed the girl had cystic fibrosis, which was finally confirmed only when Vika was 6 months old.

Over her 12 years, Vika more than once was hanging between life and death, when she was taken to the intensive care unit, her state being critical. But thanks to the joint efforts of doctors and her family members who believed in her she finally won those fights for her life.



The girl is apparently a leader, determined and goal-oriented. Besides, she is a creative personality. Despite all difficulties and having a lot of counter-indications, up to the second grade she went to an ordinary class of Khortitsa study and rehabilitation multipurpose center. But when her state became severe, she had to transfer to the individual study schedule. Now Vika attends classes only accompanied by her mother, three times a week.





Besides, she continues attending her art classes, and she is very good in drawing landscapes: Vikas drawings are full of joy and sunlight. The girl values everything she has, she observes the smallest details of this rich and diverse world, makes her best to understand it and to enjoy every moment she has.





Due to the severe disease of her daughter, her mother Alina is not able to work, so her father Aleksandr has fully taken over the task of keeping the family. It is very difficult for him, as covering daily life-saving medications for Viktoria requires a lot of money. Besides, she needs special nutrition. The girls parents have to purchase many expensive medications with their own money: Kreon 25000, Ursofalk, Berodual, Enap, Avelox, Pulmozyme, polyvitamins, antifungal drugs, and antibiotics, all of which may not be covered with the salary of Vikas father.







Vikas daily routine is hardly to be envied: she wakes up connected to the oxygen concentration device, then turns the device off and goes through her hydrotherapeutic procedures; then its time for inhalations, at a time she may take up to 3-4 various medications, with Pulmozyme and antibiotic being a must; afterwards, the oxygen level in her blood is measured; and later on Vika has consumptive cough as the inhalations lead to expectoration, so the cough lasts for up to half an hour with no breaks; then, if she feels good enough, she goes to school. More and more often Vika breathes through the oxygen concentration device on her way to school. When at school, the girl still has her cough and difficulties breathing. Her day ends in the same way it begins. The only problem is that if, God save, Vika does not have her Pulmozyme inhalation one morning, she will definitely not be able to go to school, and if she will not have such inhalations for a week or two, her lungs will not be able to function at all.

Vikas father is not able to pay for the vital medications for his daughter: only Pulmozyme inhalations for the girl cost about UAH 10,000 (606 US dollars) a month (1 pack costs UAH 2,150 (130 US dollars), and the girl needs 4.5 packs a month). UAH 3,000 (181 US dollars) more a month are required for the supporting medications, antibiotics, and vitamins.



Our foundation used to fully provide the girl with Pulmozyme, but unfortunately at the moment we do not have such a possibility. Our peer volunteers from Moscow used to save us (and we mean it), but now transfer of their aid is not possible due to the political situation between our countries and issues with customs control.

While we, adults who care, fight for every day of Vikas life, the girl does not sit idle. She hurries to live her life. She knows she is not as lucky as other children. The little Vika manages to attend school, draw, sing and do handicrafts. The girl takes part in various competitions and takes leading places. She also contributes to covering the cost of her treatment, selling the beautiful things she does with her hands in the hospital. When she acts on scene, at the backstage she has to breathe through her portable oxygen concentration device.

If you look at her photos, you will see that on many of them she stands, spreading her arms wide, as if making a deep breath, it is her subconscious act. Vika herself says that in such a way she demonstrates her love to life and to everything around her! Vika wants to live so badly as she is in love with this hard grown-up life! And she desperately needs your help!






The family lives in the city of Zaporozhzhye.

The telephone of the girls father, Aleksandr: +3 8 050 452 48 64

If you have any questions, you may contact the staff of the Happy Child Foundation.






Report on donations

Date: Donor: Country: Sum:
23.07.2015Association "Ukrainian orphan diseases"Ukraine90.85 US dollars
22.07.2015Anna K.Ukraine22.09 US dollars
22.07.2015Vasily K.Ukraine2.21 US dollars
22.07.2015AnonymousUkraine6.63 US dollars
22.07.2015Sergey U.Ukraine22.09 US dollars
22.07.2015AnonymousUkraine4.42 US dollars
22.07.2015Inna M.Ukraine6.78 US dollars
22.07.2015Vladislav ChUkraine4.45 US dollars
20.07.2015Yulia B.Ukraine4.56 US dollars
15.05.2015AndrejUkraine23.62 US dollars
25.04.2015Elena S.Ukraine8.63 US dollars
16.04.2015AnonymousUkraine42.42 US dollars
14.04.2015Elena K.Ukraine12.41 US dollars
14.04.2015Scherbina L.Ukraine4.26 US dollars
11.04.2015Angela and ChuckUSA98.1 US dollars
10.01.2015Marina F.Ukraine31.59 US dollars
16.12.2014VitalinaUkraine6.33 US dollars
20.11.2014Lyudmila K.Ukraine13.14 US dollars
18.11.2014Elena M.Ukraine6.37 US dollars
13.11.2014Alena .Ukraine3.18 US dollars
12.11.2014lavreyUkraine50 US dollars
12.11.2014Victoria B.Ukraine9.52 US dollars
11.11.2014Ukraine12.68 US dollars
11.11.2014AnonymousUkraine18.47 US dollars
06.11.2014OlgaUkraine13.92 US dollars
30.10.2014Oleg G.Ukraine7.64 US dollars
29.10.2014VikaUkraine2.25 US dollars
29.10.2014AnonymousUkraine2.32 US dollars
29.10.2014Oleksandr Dz.Germany72.3 US dollars
27.10.2014Ramina D.Ukraine22.93 US dollars
24.10.2014AnonymousUkraine7.5 US dollars
24.10.2014AnonymousUkraine2.25 US dollars
07.10.2014Andrew Z.Ukraine191.84 US dollars
03.10.2014Kislaya A.Ukraine5.38 US dollars
02.10.2014Lyudmila K.Ukraine15.37 US dollars
25.09.2014Yuliya M.undefined102.91 US dollars
22.09.2014Irina P.Ukraine14.83 US dollars
22.09.2014Ruslan K.Ukraine23.97 US dollars
22.09.2014Svetlana D.Ukraine14.4 US dollars
17.09.2014UR6QW Ukraine3.83 US dollars
19.06.2014Aleksandr B.Ukraine25.32 US dollars
01.06.2014volunteers RussiaRussia1104.03 US dollars
14.04.2014volunteers RussiaRussia1551.96 US dollars
01.03.2014volunteers RussiaRussia1303.79 US dollars
01.02.2014volunteers RussiaRussia195.17 US dollars
01.02.2014volunteers RussiaRussia1337.42 US dollars
06.01.2014volunteers RussiaRussia1398.1 US dollars
01.12.2013volunteers RussiaRussia1701.49 US dollars
01.10.2013volunteers RussiaRussia3675.09 US dollars
27.07.2013volunteers RussiaRussia3127.74 US dollars
15.05.2013volunteers RussiaRussia3127.74 US dollars
24.03.2013volunteers RussiaRussia2502.19 US dollars
Total sum of received donations 22058.45 US dollars


Expenses report

Date: Expense title: Sum, US dollars:
28.07.2015Payment funeral90.61 US dollars
23.07.2015Acquisition of drugs: Maksitsin 5 pack, 10 pack Medopenem239.02 US dollars
08.07.2015Medications: Biotum 17 pack, Kolomitsin223.47 US dollars
03.07.2015Medications: Biotum 2 pack, 21 pack Biotum, Vazonat, Kolomicin 2 pack, 10 pack Tivortin, Essenciale N 2 pack461.18 US dollars
14.04.2015Drugs: Lasolvan, Levofloxacin 2 pack, 12 pack meropenem166.18 US dollars
09.04.2015Medicines: Vazonat, Levofloxacin 10 pack, 2 pack Meronem, Tivortin 10 pack, 2 pack Essenciale353.88 US dollars
09.04.2015Medications: Vazonat, Levofloxacin 10 pack, 2 pack Meronem, Tivortin 10 pack, 2 pack Essenciale85.07 US dollars
10.03.2015Medications: ACC Long Cat 20, Flomax Cat 5, Cat 5 Kolomitsin, PMS-Ursodiol 5 pack1192.41 US dollars
09.02.2015Medications: ACC Long Cat 12, Flomax 6 pack, 12 pack Veroshpiron, Kolomitsin injection 4 pack, PMS-Ursodiol 2 pack, prednisolone 2 pack, 2 pack Enap, Essentiale forte 3 pack508.68 US dollars
22.01.2015Medicines: Diflazon 2 24.31 US dollars
22.01.2015Medicines: ACC Long 2 pack, Flomax 2 pack, 11 pack Medopenem, Meron Ormaks 2 pack727.45 US dollars
21.01.2015Medicines: Diflazon 3 pack, Lasolvan, Medopenem 5 pack, Meronem575.04 US dollars
16.01.2015Medications: Diflazon 5 pack, Lasolvan, Meron Tivortin 5 pack511.97 US dollars
27.11.2014Purchase of medicines: Kolomitsin injection 2 pack248.5 US dollars
06.11.2014Medications: Pulmozyme 10 pkg1527.58 US dollars
28.10.2014Recharge advertising account47.87 US dollars
10.09.2014Medications: Mepenam 16 pack242.45 US dollars
10.09.2014Medications: Mepenam 16 pack240.18 US dollars
09.09.2014Medications: Vazonat, Medopenem 10 pack, 10 pack Tivortin, Ciprofloxacin 28 pack219.84 US dollars
07.08.2014Medications: Kolomitsin injection fl.2000000ME 4 pack497.61 US dollars
04.06.2014Medications: Tivortin 10 pack.34.25 US dollars
04.06.2014Flomax 10 pack, Vazonat, Medopenem 28 pack, Ursofalk533.05 US dollars
01.06.201401104.03 US dollars
14.04.201401551.96 US dollars
20.03.2014Buying drugs: Kolomitsin 5 pack.512.17 US dollars
01.03.201401303.79 US dollars
01.02.20140195.17 US dollars
01.02.201401337.42 US dollars
06.01.201401398.1 US dollars
18.12.2013Zoksitsef por.d / yn-34upak, Tivortin pp - 9 pack.255.76 US dollars
01.12.201301701.49 US dollars
16.10.2013Kalsheyk 5 pack.120.33 US dollars
01.10.201303675.09 US dollars
29.08.2013Kolomitsin far. d/in.2000000ME # 10 - 5 pack.610.22 US dollars
13.08.2013Kolomitsin 49 fl.698.74 US dollars
28.07.201303127.74 US dollars
01.07.2013meals Kalsheyk213.8 US dollars
23.05.2013Tienam far. 500 mg number 10 - 3 Pack.530.34 US dollars
21.05.2013for the purchase of medicines Tienam 0.5 Tivortin 100; Vazonat231.45 US dollars
16.05.201303127.74 US dollars
15.04.2013Kolomitsin far. d / in, ING 2000000 - 2 Pack236.46 US dollars
25.03.201302502.19 US dollars
01.02.201302502.19 US dollars
25.01.2013oxygen Concentrator1714 US dollars
17.01.2013Medical evaluation and purchase of medicines Meronem-3up.969.6 US dollars
01.01.201303753.28 US dollars
26.12.2012Drug Purchase Kolomitsin, Gentomitsin127.74 US dollars
30.11.2012Kolomitsin127.74 US dollars
29.10.2012Kolomitsin 1upak.112.97 US dollars
Total expenses for this category 21708 US dollars








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