Support children diagnosed with cystic fibrosis
Mark Bondarev, 5 years old - Cystic fibrosis
Published: August 27, 2019, 16:50
1054
Mark's outpatient medical record is more like a medical guide than a chart. All efforts of the family are aimed at combating cystic fibrosis and its complications.
1054 Mark's outpatient medical record is more like a medical guide than a chart. All efforts of the family are aimed at combating cystic fibrosis and its complications.
Reflecting on life with cystic fibrosis
Published: July 26, 2019, 21:301097
Natasha Onufrievas reports on frank discussions with her daughter Alice about life with cystic fibrosis.
1097 Natasha Onufrievas reports on frank discussions with her daughter Alice about life with cystic fibrosis.
A breath of freedom — the dream of people with CF
Published: March 1, 2019, 22:001120
How is life with cystic fibrosis (CF)? It is a struggle for every breath.
1120 How is life with cystic fibrosis (CF)? It is a struggle for every breath.
Electricity dependence that ruins your life
Published: November 16, 2018, 18:401698
Tanya's escape from home prison costs 4650 USD. This is the price of a new portable oxygen concentrator. Your support is truly life-saving!
1698 Tanya's escape from home prison costs 4650 USD. This is the price of a new portable oxygen concentrator. Your support is truly life-saving!
Yegor Bespalyi, born in 2017 - Severe cystic fibrosis
Published: July 4, 2018, 9:00844
To be home with Mum and Dad is possible! It’s up to us to help Yegor!
844 To be home with Mum and Dad is possible! It’s up to us to help Yegor!
Zlobina Tatiana, saving on every breath
Published: July 13, 2017, 8:00987
The price of each breath is too expensive. Tanya from despair makes a choice in the direction of economy.
987 The price of each breath is too expensive. Tanya from despair makes a choice in the direction of economy.
Serhii Matveychuk, born in 1993 - High degree cystic fibrosis
Published: June 15, 2017, 18:453069
Without the necessary medicines, my condition will only deteriorate, and I dread to wait for the next worsening, because antibiotics that I can buy will not help me anymore.
3069 Without the necessary medicines, my condition will only deteriorate, and I dread to wait for the next worsening, because antibiotics that I can buy will not help me anymore.
Good news!
Published: May 25, 2017, 19:50782
Aniutka Diatlova`s mother shares good news with us.
782 Aniutka Diatlova`s mother shares good news with us.
Olga Pavlenko, born in 2002, high degree cystic fibrosis
Published: May 18, 2017, 15:454272
Olga knows all about the day-to-day taking medicines schedule and vital inhalations, she abides and keeps doing. She has additional pills arranged in sets for morning, afternoon, evening (in case if it gets worse)
4272 Olga knows all about the day-to-day taking medicines schedule and vital inhalations, she abides and keeps doing. She has additional pills arranged in sets for morning, afternoon, evening (in case if it gets worse)
Ira Antonova, Kostiantin Antonov with high degreeсystic fibrosis
Published: April 15, 2017, 17:203837
Now the State completely ceased to care and help me as if in a single day I disappeared, me, my illness and my problems. I am over 18, I am with cystic fibrosis, and I exist!
3837 Now the State completely ceased to care and help me as if in a single day I disappeared, me, my illness and my problems. I am over 18, I am with cystic fibrosis, and I exist!
Publications found: 61
Publications are shown from 1 to 10
Publications are shown from 1 to 10
