Arthur Kerimov, born in 2011 - symptomatic myoclonic epilepsy
Two-year-old Arthur can't sit or walk yet. Every day he suffers from constant epileptic seizures. There is hope but no money. Please help us raise funds for the next course of treatment in October!
Arthur Kerimov, born on 16.05.2011
Diagnosis: Symptomatic myoclonic epilepsy.
There is nothing better, nothing more moving or heartwarming for a mother as hearing when her child calls her "Mommy". It's priceless...
Irina and her husband long dreamed of and believed that they would hear children's laughter, stamping of children’s feet in their home; they hoped their family would consist of at least three kids. Perhaps the Lord heard them and gave them 2 children at once.
"When we learned that we were going to have twins, I immediately felt that it would be "royal" twins - a boy and a girl, and so it happened. But the difficulty already waylaid our family,"- says Irina.
The children were born with low birth weight and very feeble, so they were immediately taken to an intensive care unit. On the 4th day the boy stopped breathing, on the 5th day the girl ceased to breathe as well. They were both connected to the medical ventilation apparatus. In 2 weeks the girl was "tired" to breathe with the help of the machine and she managed to break off the apparatus tube. There was positive dynamics in gathering strength and all the vital functions. Now she is two years old and not only she caught up with her peers in physical and mental development, but she also surpassed. Karina is a very athletic, smart and talented girl. She can retell many tales, loves her brother Arthur and cares about him.
But Arthur ... it is much more difficult with him. When the child reached 2 years old, doctors diagnosed a serious disease - symptomatic myoclonic epilepsy.
"Our son was a true warrior. He had been helping physicians to fight for his life for 4 months in an intensive care, and later he managed to overcome the bronchopulmonary dysplasia, pneumonia, and much more. But for the time being the child cannot walk or sit, he can only fix his head a little", - Irina continued.
The basic diagnosis of "symptomatic epilepsy" is the hardest and rarest form of children’s epilepsy. Severe spasms, which could occur up to 100 times a day, did not allow the child to lead a normal life. All anticonvulsants, which little Arthur had taken, did not remove spasms, they only turned the child into a "plant". Then the doctor recommended consulting Professor S.K. Yevtushenko, the best epileptologist in Ukraine. In June 2013 the child underwent a course of medical treatment, and his anticonvulsive therapy was changed.
The results were obvious and this is real progress for little Arthur. The number of seizures decreased from 100 to 10-20 per day, his physical activity intensified.
The child's mother is sure that this is only the beginning! We believe that we can continue to gladden everybody with achievements. But it requires a serious financial support. We are slowly but steadily moving forward to the set goal.
During all this time the family spent their personal savings, the money gathered by friends and acquaintances, took loans from banks. They spent more than 50 thousand hryvnyas (approximately 6,000 US dollars) for the 4 months in the intensive care unit. The previous course of treatment including the purchase of new drugs cost them 12 thousand hryvnyas (1,500 US dollars).
Now they have to repeat the treatment in October. Monthly expenses for medication and local rehabilitation are 2.5-3 thousand hryvnyas (300-400 US dollars).
"When we completely get rid of convulsions, Arthur will have 2 operations: to remove an inguinal hernia and insert the implant into his ear. And then he will have to undergo a few courses of serious rehabilitation".
The child’s disability pension equals 1,100 hryvnyas (137 US dollars). Irina is on maternity leave till her children are 3 years old. Her husband had to shut down his business activity in 2011 after the birth of the children, as Irina was often in the hospital with the boy, and he had to stay at home with Karina because all their relatives live far away.
Arthur’s monthly expenses are as follows:
- Sabril - 500 mg;
- Levitsitam - 500 mg
- Sinakten depot - 1 ml.
- Bioven Mono - 10% - 50 ml.
- The course of home rehabilitation.
- Carrying out MRI of the brain, etc.
But we believe in Arthur, believe that all our efforts will be lived up and we will be able to make the life of this little boy easier. We only need some money.
We know that there are people who are willing to help!
Help us cure the boy.
The family lives in Zaporozhye.
This is the phone number of Irina, Arthur's mother: +38 068 728 13 76.
For further information please contact the volunteers of “The Happy Child” Foundation