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Gleb Lavrik, 2 old - tuberous sclerosis

February 28, 2017, 13:00 2903 Author: Vakulinskaya Alina, translated to English by Oleg Kudashov deti.zp.ua Fundraising is closed! Due to the lack of relevant information about the needs of the child

Gleb Lavrik, 20.04.2014 born

Diagnosis: Tuberous sclerosis.

News about treatment Lavrik Gleb

Conclusion: 1, 2, 3, 4, 5, 6.

Reference: 1, 2.

Conclusion: 1, 2, 3.

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The report on the arrived donations

ATTENTION! AS AT 27.01.2018: Fundraising closed!

Due to the lack of relevant information about the needs of the child


Gleb is 1year 7 month old. He is a long-awaited baby in Lavryk’s family; he is the only child in the family. Gleb’s mother found out that he has heart problems, notably multiple rhabdomyomas in the heart, in the last scheduled ultrasound in a few weeks before birthday.

Doctors diagnosed tuberous sclerosis and West Syndrome after numerous studies.

They warned that in case of vitality baby after birth, him will be waited multiple developmental disorder, because this disease damages the brain. In 4 month appeared cramps. Parents found out that brain is damaged after MRI of brain. Doctors discovered in it multiple tumor formations.

Doctors dropping their arm and give disappointing forecasts. This disease is not treated, it’s progressing and life expectancy is low. But Olga and Yuriy don’t want to believe it.

Diagnosis had, unfortunately, confirmed, after numerous studies. But doctors do not exclude the possibility partial restoration of child’s health. This requires ease seizure.

According to last studies, Gleb was prescribed anticonvulsants Sabril and Ospolot. Total cost medicines per month is 100 USD.

We have a wonderful, cheerful resilient boy. He doesn’t give up.

And we make every effort to fight disease. Despite the doctors forecasts we believe in miracle. After numerous studies and treatment expensive meds our financial savings dried up. “We ask for the help of indifferent people to provide financial support to acquire high cost drugs for treatment our boy” mother Olga, father Yuriy.

The family lives in Melitopol, the Zaporizhia region.

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